Photo Copyright: Maggie May
The past two weeks have been a time for adjusting to our new situations.
I started off by feeling rested with renewed energy after many months of little sleep because of the constant demands of being a carer. Harry and I were both accepting of the fact that we now have to live apart as I cannot cope with him unable to walk or stand.
However, I'm now beginning to feel much more sad, as the unrealistic reality of the possibility of him ever coming home or recovering, is setting in.
At first, Harry seemed to be improving and I seriously questioned whether he really needed to be in the care home. It is now apparent, as his illness is taking more and more of him away from me, that he will not be able to manage anywhere else.
He is increasingly tired and wants to spend more and more time in bed sleeping.
I don't think he really needs anything more as the nurses and helpers are giving him excellent care, spoon feeding him when he's too tired to feed himself and keeping him clean etc.
I spend most of my days visiting him and if he wants to sleep then I quietly get on with my knitting or read my book.
Sometimes he doesn't remember anyone going and often misses visits completely, other times, he sits in his chair and talks or watches TV. He's never the same twice and seems to be predictably unpredictable. I think this is the hardest thing for me to cope with as I swing from renewed hope to despair and back in a constant circle.
Yesterday, my brother, Eddie whose blog many of you follow, managed to drive over to see Harry, together with our cousin Rod. Harry and I were particularly pleased to see long lost cousin but also Eddie, who has been restricted from travelling because of his really horrible leg ulcer, that is now responding quite dramatically to the skill of the district nurses. After we'd seen Rod onto his train to the north west of England, Eddie ran me home and we bought a fish and chip supper and spent some time together before he headed back for home.
On the positive side, I do receive a lot of pleasure from my garden and the spring flowers that are now in full bloom. It is my favourite time of the month, but this year it's tinged with sadness.
Photo Copyright: Maggie May