Showing posts with label Deb. Show all posts
Showing posts with label Deb. Show all posts

Saturday, 25 October 2008

Moving On.



Harry and I seem to be travelling to Victoria Coach Station and beyond rather frequently, these days. We are going again to our daughter's and will spend the whole of the half term there.

Many people are kindly asking how she and the boys are getting on, since the death of the knight. Judging from my last visit and from my phone calls, Deb seems to be strong. She has her good days and her bad days, which I should imagine, is normal under the circumstances.
When one loses a husband, there is a whole mound of complicated paperwork to fill in. There are bills coming in and delays in the payments and concessions that are due. Well I won't go into details because that is too personal, but believe me, it all adds to the stress and I am very proud of the way she is handling things, so far.

The youngest boy, aged ten, who we call the brown haired boy, seems to be coping very well. However, I feel he is shelving his feelings and shrugs off any hurt. He seems to be getting on with his life.
The fair haired boy is angry, very angry and kicks at everything as he walks outside. This twelve year old is the one most like his father in looks and personality.
While I was staying last time, he had developed school phobia, choking on his breakfast in the mornings and being reluctant to leave the house, even though Harry went with him to the bus stop.
This boy prefers to sit outside the school office than to go in to his various classes, though things have calmed down a bit since we were there last. However there are still difficulties.
He is waiting for a test for autism. His appointment is for some time next month. It will be good to know how best we can help him whatever the tests reveal.

I think I first suspected that he might have a tendency to Asperger's syndrome when he was about three years old as he always played by himself in his own little world, rather than with his playmates who were totally ignored. He was not a cuddly sort and he avoided eye contact. He did not always respond to questions, though clearly this was not out of rudeness. He always talked for hours about trivia, whether anyone else was listening or not.
However, some things do not fit in with the expected pattern, as he has always played well with his brother and he does make eye contact when asked to.
School started to notice that he was 'switching off ' rather a lot during lessons and going into a little reverie. It is more noticeable now that he is at secondary school and his work is falling behind. He has one or two friends and on the whole, people are very kind to him.

When we left the last time, the fair haired boy clung to me and I said, "We do love each other, don't we?"
He looked at me and nodded and I told him we were coming back soon at half term.
So I'm not sure that he does fit the Asperger's pattern completely, but there seems to be a tendency there. However, it is not extreme like the boys I have worked with in the special school.
Maybe every one is on the spectrum somewhere.

The day of the funeral was warm and dry, which helped to make it less terrible.
The church was packed, not only with Deb's friends and acquaintances, but also with many supporters of the Knight. There was no doubt that he was a very clever man and he was very respected at work, so it was not surprising that many stood up and gave a verbal tribute to him. It turned out to be a celebration of good things and nothing negative was said at all, which was only fitting at a funeral. However, some of us secretly wondered if it was the same person that we had known.
All the family put individual flowers on top of the coffin, before it was lowered into the ground. The boys were very, very brave, but I shall never forget the look on their faces when this was done. It really got to me and the impression of it will stay with me forever.

The opening in the ground was extremely deep and the vicar was nervy because my two small grand daughters kept running towards the edge, to search for the flowers that they had placed there earlier and now seemed have to disappeared forever. Sam had to grab their clothes to stop them falling in as they didn't seem to be aware of any danger.

It was good to meet up with long lost family and friends afterwards and to catch up with the new people as well. Soon the day was over and most people left, a few at a time, some to travel many miles home.
Thank Goodness we didn't have to go till some time later in the following week. There was a slight feeling of desolation, but it didn't last long. There were things to do.
The garden is very large, the lawns too big. Shrubs needed to be cut back. Harry and I got to work in the garden over the next few days, clipping and cutting. We cut all the available lavender, bundled it up and wrapped the long stems with cord and took the harvest to the grave. The Knight would have appreciated that as he loved his lavender.

I will miss the blog while I am away and wish I could take my laptop with me. We already have too much weight to carry, so will have to make do with books.
I will try and borrow my daughter's computer if I can get the boys away from the games they have on there.
However there will be plenty of chopping and cutting to do.
Back in eight days! 

Saturday, 19 April 2008

It's A Tough Life Sometimes .......





A few days ago I wrote about my daughter coming to visit unexpectedly to escape for a while from a husband whose behaviour seemed to be changing for the worse by the minute. Even when she had travelled for six hours (there was a big hold up on the motorway) to get here, he phoned and asked her to get the doctor for a home visit because he had a headache and was being sick. It looked at the time like he was making her pay for leaving him for a few days. There is a full account in my post. Click here.

Well, at the time that she was here, I felt a bit torn between two feelings. First that Deb is my daughter and is being put down all the time, by husband's critical and increasingly aggressive behaviour and that he is acting in a more and more bizarre way. So I was naturally annoyed with him for making her unhappy. Secondly, there was a niggling feeling that he might be seriously ill.

Now she has rung in a terrible state telling me he has been rushed to hospital with a suspected brain tumour. He has had a temporary scan that shows a "mass" and he will need to be transfered to a hospital that will be 20 miles from where they live for further scans, a biopsy and to see whether it is operable or not. This is further complicated by the fact the car that she had repaired while staying with us, has now broken down again. The alternator that the garage here put in has let her down and she has to pay for a new one. The garage here, says that they would need to see it & test it before they could do a refund. That is the end, really it is.

This post is a rant at life's unfairness, as Harry is already battling with cancer & the treatment has left him grumpy! I feel it is a release to just get this off my chest! 
Deb lives 200 miles away and has 2 kids and does child minding that she finds difficult while she is so distraught, but has to continue with as they have a mortgage. 
I have just committed myself to look after the 2 girls while Sam works two days a week and his wife already has a high powered job in another town 30 miles away!
I must keep my two jobs going as at 65, I would not get other employment if I let these go. The thing is, we all need the money from these jobs to pay our way and now I feel I just want to be with Deb & to put my arms around her and not just have the two of us crying down the phone all the time.

I know we need to all keep calm and to go about our daily business while all this gets sorted...... but it is really hard and I'm really sorry I can't be my cheerful self just now.