Sorry about that blip, which I wasn't expecting.
I was able to read your comments from time to time.
It was so encouraging to read your good wishes and know that everyone is rooting for me. That means so much to me.
I had meant to keep this blog fairly cancer free and carry on writing like I used to...... with humour and photos and memes etc. However, that is never going to work now as I am being treated for cancer and I feel every day there is a struggle to just do the necessary things for survival. I have got some things in draft form and later on I will post them. Today though, I feel that I have to be true to myself and I guess you are all wondering what I really feel like. I think it would be more real to be honest and if anyone is upset by it, then I'm sorry. Some of you have already been treated with chemotherapy and am really pleased you took the trouble to write to me and encourage me.
The treatment is different for everyone and each person is probably being treated very differently from someone else.
When I had the the chemical put in through a drip (it took hours) I had been told that if it got onto the skin it would cause burns. How the body copes with it I do not know. So its not surprising that it has taken its toll and given me some nasty side effects.
The worst part, I think was not knowing what is going to happen to me and for how long. I got a list of possible side effects and other cancer suffers could tell me what they felt. Its not the same though and I had nothing to go on as to how I would cope.
The main problem that hit me straight away was screaming joint pain. Obviously I have arthritis at my age and that seemed to be amplified big time. The thought of that going on for months made me wonder whether it was worth it. Fortunately for me that passed after several days.
The next thing was even worse.
I became extremely negative and had visual disturbances ....... things that slithered on the floor like snakes. I knew they were not real but I thought I was going mad. I kept feeling I couldn't go on with it and the family had to get me to a locum doctor, who said I wasn't psychotic but the chemicals were causing me to have visual effects. Fortunately this only lasted a few days.
The sickness had already set in by then and I couldn't keep anything down. I was getting so weak. I didn't think my body would cope. Not being able to drink anything, the hospital was considering having me admitted to the ward if it continued.
Yesterday, I felt I was able to think more clearly and waves of tiredness consumed my body and I slept for hours.
My wonderful daughter gave me a tiny lunch of a baked potato and a small slice of pizza that tasted so wonderful and I managed to keep that down. While I was eating the meal, she had a friend round, who I knew well from the days when all our children were at school together, and I can remember talking to her for a long time and suddenly I woke up and she was gone. I had slept on the settee for a few hours. I went to bed and slept for hours. Seems I cannot get enough sleep.
On arising today, I ate breakfast and drank plenty. My sight had been affected badly in one eye, making me feel I had done real damage to it through these blasted chemicals..... however this morning, I can read again.
I am not as creative anymore. I cannot concentrate. I had hoped to use this recovery time to read and blog. Maybe I will feel stronger soon. I know that the next week or two will make me very vulnerable to infection as my red and white cells and platelets are having to re build to normal.
However, today I am alive and in a better frame of mind and resting. I can eat and drink without being sick. Theres always something to be grateful for and today I am in a positive enough frame of mind........ so I am grateful about that.
However, the thing that I am most grateful for is that I have noticed that the tumour in the groin has diminished considerably...... so it does look as though that is the right treatment for it.
